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One Litre of Tears

Few weeks ago, wawa recommended me to watch this drama serial. Yesterday, i watched the movie on 'One Litre of Tears'. Immensely touched by the short movie, i continued to watch the drama serial.

This drama is about a girl who was diagnosed with a disease called Spinocerebellar Atrophy, in which the nerve cells of areas necessary for the human body to move and balance–including the cerebellum, brain stem, and spinal cord–transform and eventually disappear. when she was 15 years old, and was able to continue her life until her death at the age of 25 years old.

The plot is based on the true story of a Japanese girl named Kito Aya, who had the same disease. She kept writing in her diary to remember her experiences until she could no longer hold a pen. Aya simply wished to live until the end of her life, and the purpose of writing in the diary was to remind herself to not give up. She shed tears many times, at the same time encompassed by the rich love and support from her family, friends, and boyfriend. Her diary “1 Litre of Tears” was published after her death, because of its inspiring and courageous message of, “Just being alive is such a lovely and wonderful thing.”

Synopsis:
Ikeuchi Aya (Sawajiri Erika), a 15 year old girl, is the eldest daughter in a normal Japanese family. She lives with her reliable mother, Shioka, who works as a nutritionist, her father, Mizuo, the wacky owner of a tofu shop, her quiet younger brother, Hiroki, and two younger sisters, the sarcastic Ako and innocent Rika. On the day of her high school entrance exam, she left the house full of energy, but she missed her stop to get off the bus and walk to her high school because she fell asleep. She quickly got off and ran from the bus in the rain when she discovered she was late. She slipped, fell down and injured her knee. At that time, she met Haruto Aso, who was trying to skip the exam. He gave her a ride to school, the administrators allowed them to take the exam (despite the fact that Haruto was uninterested in taking it), which they both later passed.

The new semester began, Aya and Haruto were in the same class, and both were elected as the representative of their class. Aya also joined the basketball team, and was reunited with the boy who she was fond of from the male basketball team. Just as she was beginning to enjoy her high school days, Aya starts to experience some physical difficulties. She always dropped food from her chopsticks, could not estimate the distance of the objects in front of her, could not pour water into a cup without spilling it, and occasionally wobbled while walking. Her mother, Shioka, who was the only one to notice the physical changes in Aya, started to worry about what was going on.

One day, Aya’s life started to change after she tripped and fell. She couldn’t protect herself with her hands while falling and she hurt her face. After this, her illness is slowly revealed and her tragedy begins…

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My first reaction was to google what is this SCA all about.

Spinocerebellar ataxia (SCA) is one of a group of genetic disorders characterized by slowly progressive incoordination of gait and often associated with poor coordination of hands, speech, and eye movements. Frequently, atrophy of the cerebellum occurs.
As with other forms of ataxia, SCA results in unsteady and clumsy motion of the body due to a failure of the fine coordination of muscle movements, along with other symptoms.
There is no known cure for spinocerebellar ataxia, which is a progressive disease (it gets worse with time), although not all types cause equally severe disability.
Treatments are generally limited to softening symptoms, not the disease itself. The condition can be irreversible. A person with this disease will usually end up needing to use a wheelchair, and eventually they may need assistance to perform daily tasks.

Kito Ayo. At the peak of a teens life at a age of only 15 yrs old, she was told of her incurable disease. Incurable? Meaning death call is awaiting and welcoming? Soon, she was couldn't run about without falling clumsily, couldn't walk properly as her legs weaken day by day, and eventually lost her mobility to a wheelchair. She lost her school, and friends who eventually got tired of looking after her and her future. Each day, she woke up in fear, and progressively losing the things she owned and herself.' Why me?' and 'Whats my purpose in life?' were the two questions that hunted her everyday? Nevertheless, with the love and support from her family, she fights to live on and she found her purpose to write about her life and did not stop even she was bed-ridden. Finally, she did when she lost her arms mobility and eventually her speech movements.

To us human, hope is what makes us look forward in life. Hope to become rich, hope to have a good career, hope to find the best partner, HOPE. How would one feel when you know that everything of yourself will be robed off slowly and progressively? No matter how positive or how strong, how would you live on? What I greatly admire about Aya is her will to help people and make a difference even til the end of her life, that unyielding and purposeful spirit.

For me, I have always been in search of my purpose in life. I love my family more than anything, i want to give them the best of the worlds- and it makes me sad to think of my limitations. I am also blessed to have many friends who have made me what I am today. Wawa, ai and yan- who never gave up on me and love me whatever the person i was and am. My monstas who cherished me as a friend all this while. Despite my anger and impulsive actions, i really treasure our friendship. During my uni life, i met many great friends who helped me discover my potentials and believed in me. My string friends- kyong, jess, angela, yiting, chris, all of you who helped make NTU String Orchestra possible. My CAC friends- Hoi, Dione, Jeff and everyone for giving me such a memorable life in CAC. I'm especially grateful to Jeff and Kyong, who not only believed in me, but made me believe in myself that lead me to pursue my impossible missions, and overcoming each and every obstacles along the way. At the end of the day, it's the process that makes the best memories.

When i start working, in the last 6mths, i start to feel i'm losing myself and gradually hiding in the defensive shell of mine. I dare not face anyone or anything, only hating myself for the despair that i'm bringing upon myself. Because of my limitations on technical abilities and mistakes, i chose to run and seek a new career. I told myself this is not what I want, what i want is to succeed as a salesperson, the challenge above it all. After yesterday, i question myself again. Would i say that i'm not suited to be a salesperson after 6 mths?

Ayo accomplished her mission in life of helping people becoz of her inspirational diaries that lit the light of life for many. I believe my mission in life is to make a difference to help people too. I used to think I can only people when i am successful in life in order to qualify, but look at Ayo. Being healthy and able, shouldn't i, we start doing our part?

Great inspired by this story, I've to re-organize my thoughts and decisions...

Lastly, to anyone who reads this post, I strongly urge you to watch this show '1 Litre of Tears' which I believe will help find the meaning and purpose in life.

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September 2008

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